Wednesday, 11 January 2017

Not so happy new year

Well I did say I was going to try and have Christmas and the New Year off from hospitals, poking and the like but as Edmund Blackadder once observed "The path of my life is strewn with cowpats from the Devil's own satanic herd!" and I never made it to the early January regular appointment.

The Ascites and the pain associated with it got worse... and worse. Managed to see the GP just before Christmas and he got me onto Oramorph, a liquid form of morphine which is stronger that the semi-synthetic opioids I've been taking and that just about got me through the Xmas bank holidays although my Christmas lunch was a tiny bit of turkey and stuffing, a roast potato and a very lonely pig in blanket. Big, jolly spirit of Christmas Present I most certainly was not. By the Wednesday thing were starting to get even worse, food was becoming almost impossible to eat as anything above a couple of mouthfuls was coming straight back up, unlike at the other end where nothing was coming out. The "Emergency Oncology Number" at the hospital was about as much use as a chocolate teapot; they seem fine when you're actively taking chemo but all they came up with after some faffing around was "you should go to A&E"

Now I'm of the old school where you go to Accident and Emergency when your leg has been torn off or your heart is trying to exit your ribcage with a vengeance. Sure this was bad but not an emergency so I just put up with it for another night.

Probably not that smart. In the morning put in a call to the GP

"Hi I'm one of Dr H's cancer patients can I have an appointment?"
"Can you be here in 40 minutes"
"Yep"

So much for the wait for 4 weeks for an appointment*

However Dr H is in a bit of a bind, it's obvious I need something doing to drain this fluid but he can't book me into anything as he can only send me to King's Lynn who don't know me from a hole in the ground and there's no clinical notes or from Cambridge. So he sends an urgent fax (yes fax, this is the ultra-modern NHS) to the oncologist and will call me back. In the meantime here's some slow release mophiene

Following morning I ring them, nope no reply yet and then around 4pm he calls me. "Not heard anything, can't contact anyone, looks like they've knocked off for New Years Eve weekend. Do you think you can cope?"

I catch a glimpse of myself in the reflection from the kitchen window, sunken face, staring eyes, dehydrated and grimacing in pain. I look like an extra from a George A Romero zombie movie.

Fig 12: "Draaaaains"


I'm a proud, maybe stubborn dragon but I need help.

"No"

"Leave it with me."

Two hours later I'm in the Medical Assessment Unit at the Queen Liz II, ripped to my wingtips on painkillers, IV fluids going in and booked in for a drain in the morning. I'll gloss over the next 48 hours as that's a blog post on its own but by the end of New Years Day I'm back in the lair and 5.5 litres of yellow peritoneal gunk lighter.

So a week later having had a rocky road back to something approaching vertical that appointment with Dr A comes around so off I go back to Addenbrookes.

And this is where I got the news that I'd kind of being expected and that I wanted to let everyone know about.

Basically, your winged friend is toast.  The cancer has spread to far and I'm too unwell to receive any more treatment for it as it'll just be counterproductive. So although it seems to be the word they don't use any more my condition is now terminal.

Dr A was excellent throughout, just as he has been for the last three years. I really could not have wished for a better consultant throughout this whole drama and yet again he was up front and honest about timescales.

We are looking at weeks.

As long as I'm comfy as possible I can take that. And they are working very hard at comfy - more on that to follow.















* Although saying the magic C word doesn't half shift things along.

27 comments:

  1. Mr Dragon, I'm crushed to read this. Be assured of my prayers and enfolding hugs as you cope with it all. You are such an inspiration to us and I'm proud to have met you. I hope that your are blest with peace and that your consultant continues to come up trumps with your care. Massive hugs, Brian x

    ReplyDelete
    Replies
    1. I want to share my testimony about my HIV virus that was cured by a herbalist DR OBATA TWAHAwith his roots and herbs,Since last 4 years I have being a HIV AID patient. I never think I will live long again and am so grateful about DR OBATA TWAHA who cured my HIV AIDS last week. I was in pains so I told one of my friend and she told me that there is a herbalist that can cure my HIV with his roots and herbs,she read someone testimony from a website online on how DR OBATA cure her from HIV AIDS and she also collected DR OBATA website and email. She gave me the contact info, I emailed him and he prepared herbal medicine for me with his roots and herbs, after two weeks he ask me to go for a test. Which I did, when the doctor told me that am now a HIV negative patient I couldn't believe myself I went to see another doctor and the result was still the same, Thank God everything is fine, I'm cured by DR OBATA with his herbal medicine, I'm very thankful to DR OBATA and very happy with my family.DR OBATA TWAHA can also offer any types of help like Curing of all types of Diseases and lot's more.Email: droobataspelltemple@yahoo.com ,Call or Whats-app: +2349051384341Website: https://droobataspellhome.wixsite.com/drobata https://droobataspelltemple.skyrock.com/3293932802-I-AM-DR-O-OBATA-A-GREAT-SPELL-CASTER-AND-SPIRITUALIST-WHO-CAN-HELP-YOU.html

      Delete
    2. I don't know exactly what to say. I just want to testify that your work is really powerful and helped me to get rid of that bad luck and bad karma I had for years. I feel like I'm a new man now. You're just as amazing as you say!!!! But to be frank, I think that there is no word to describe how fantastic person you are!Am now also free from HERPES VIRUS all thanks to you sir DR OBATA///// MICHAEL JANESSA USA.... droobataspelltemple@yahoo.com ,you can also call him or add him on Whats-app: +2349051384341, https://droobataspellhome.wixsite.com/drobata , https://droobataspelltemple.skyrock.com/3293932802-I-AM-DR-O-OBATA-A-GREAT-SPELL-CASTER-AND-SPIRITUALIST-WHO-CAN-HELP-YOU.html

      Delete
    3. What can i say about him i am very grateful to see i am finally cured from this HSV2, it have been going to about 1 year and 6 month when i have this sickness i have try different means to get my self cure but nothing work out, i can stand and say today with the help of herbal medicine and Dr. Abegbe there is cure to HSV 2.
      i found out about this man through daniel paisley on a blog which talk about herpes cure, how he was cured through the herbal medicine which was sent to him from doctor abegbe so i keep in contact with daniel paisley how all this work so he explain to me very well that the herbal need to be taking twice a day morning and evening, there is going to be soap for bathing too, and the amount it cost, so i was so very happy to hear such i quickly email the doctor for the herbal in 4 days time i have the herbal medicine in my country USA and the doctor write along with the instruction how to applied the medicine i am very happy now to tell you this i am negative from HSV 2 after taking the herbal for 2 week, i know there are many people in the world who is also in searching for cure, you can just email my doc now for the herbal medicine through now DR.ABEGBESPELLHOME@GMAIL.COM OR DR.ABEGBESPELLHOME@HOTMAIL.COM And if you which to talk to me and get more information about my doctor please just email me through this email: ryanwesley2019@gmail.com my name is Ryan Jasmine Wesley
      And he also have cure to the following sickness
      HIV/AIDS
      HPV
      CANCER
      ALS

      Delete
    4. I want to use this oppotunity to thank Dr Osebor for helping me to win the lottery.I have been playing the lottery for the past 2 years now and the only big money i have ever won was 1000$.Ever since then i have not been able to win again and i was so upset and i need help to win the lottery so i decided to go online and search for help,there i saw so many good talk about this man called Dr Osebor of how he have cast spell for people to win the lottery.I contact him also and tell him i want to win a lottery he cast a spell for me which i use and i get my ticket and play and i won $50million.I am so greatful to this man just incase you also need him to help you win,you can contact him through his email: oseborwinbacktemple@gmail.com or call OR WHAT SAPP him at +2349066110887

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  2. I know nought of how to address a dragon so I will go with My Lord and Mighty Dragon

    I am so glad your toast is more Quentin Crisp, as in "I don't drink coffee I take tea my dear...." so that I can tell you what a damn good read your blog and twitter have been.

    If ever I am in a similar pickle I hope I am half as noble as you are and can find amusement in the most unlikeliest of places as you have.

    I have never commented before as I have never known how but if you are reading this I have somehow worked it out.

    Please recommend a drink and a song and I shall raise a glass to you my winged friend x

    ReplyDelete
    Replies
    1. I don't know exactly what to say. I just want to testify that your work is really powerful and helped me to get rid of that bad luck and bad karma I had for years. I feel like I'm a new man now. You're just as amazing as you say!!!! But to be frank, I think that there is no word to describe how fantastic person you are!Am now also free from HERPES VIRUS all thanks to you sir DR OBATA///// MICHAEL JANESSA USA.... droobataspelltemple@yahoo.com ,you can also call him or add him on Whats-app: +2349051384341, https://droobataspellhome.wixsite.com/drobata , https://droobataspelltemple.skyrock.com/3293932802-I-AM-DR-O-OBATA-A-GREAT-SPELL-CASTER-AND-SPIRITUALIST-WHO-CAN-HELP-YOU.html

      Delete
  3. Initially started reading you via your maths posts.

    I wish the best of what is.

    ReplyDelete
    Replies
    1. I don't know exactly what to say. I just want to testify that your work is really powerful and helped me to get rid of that bad luck and bad karma I had for years. I feel like I'm a new man now. You're just as amazing as you say!!!! But to be frank, I think that there is no word to describe how fantastic person you are!Am now also free from HERPES VIRUS all thanks to you sir DR OBATA///// MICHAEL JANESSA USA.... droobataspelltemple@yahoo.com ,you can also call him or add him on Whats-app: +2349051384341, https://droobataspellhome.wixsite.com/drobata , https://droobataspelltemple.skyrock.com/3293932802-I-AM-DR-O-OBATA-A-GREAT-SPELL-CASTER-AND-SPIRITUALIST-WHO-CAN-HELP-YOU.html

      Delete
  4. Well, where to start? I've followed you since the early days (2005) of (semi) anonymous work blogging, and beyond. Willing you to get through these last few years since the diagnosis, and your humour and ability to cope through all the various poke-age and treatments has been amazing. Sending good wishes and hopes that if it has really come to this, it's as comfortable as possible, and there are still days of enjoyment and good drinks at the very least. This is almost certainly clumsily written, but I just wanted to let you know that you continue to mean so much to people like me that you've never met, and sending the best of wishes to you and Mrs D.

    ReplyDelete
  5. What to say?

    I can only wish you a close of your own preference, unhindered by NHS bungling and intransigence. Your blog has been an eye-opener.

    ReplyDelete
  6. MY NAME IS MARIAM FROM SOUTH AFRICA...I SAW THIS COMMENT ON POSITIVE BLOGS AND I WILL LOVE TO TELL EVERYBODY HOW MY STATUS CHANGES TO NEGATIVE, AND AM NOW A LIVING WITNESS OF IT AND I THINK ITS A SHAME ON ME IF I DON'T SHARE THIS LOVELY STORY WITH OTHER PEOPLE INFECTED WITH THIS DEADLY VIRUS...,HIV HAS BEEN ONGOING IN MY FAMILY... I LOST BOTH PARENTS TO HIV,. AND IT IS SO MUCH PAIN IVE NOT BEEN ABLE TO GET OVER.. AS WE ALL KNOW MEDICALLY THERE IS NO SOLUTION TO IT..AND MEDICATION IS VERY EXPENSIVE..SO SOMEONE INTRODUCED ME TO A NATIVE MEDICAL PRACTITIONER IN AFRICA..I HAD A JOB THERE TO EXECUTE SO I TOOK TIME TO CHECK OUT ON HIM.I SHOWED HIM ALL MY TESTS AND RESULTS.. I WAS ALREADY DIAGNOSED WITH HIV AND IT WAS ALREADY TAKING ITS TOWL ON ME.. I HAD SPENT THOUSANDS OF DOLLARS SO I DECIDED TO TRY HIM OUT...I WAS ON HIS DOSAGE FOR 1 MONTHS. ALTHOUGH I DIDNT BELIEVE IN IT, I WAS JUST TRYING IT OUT OF FRUSTRATION... AND AFTER 2 WEEKS, I WENT FOR NEW TESTS... AND YOU WONT BELIEVE THAT 5 DIFFERENT DOCTORS CONFIRMED IT THAT AM NEGATIVE..IT WAS LIKE A DREAM,,I NEVER BELIEVE AIDS HAS CURE..AM NOW NEGATIVE,,AM A LIVING WITNESS..I DONT KNOW HOW TO THANK THIS MAN... I JUST WANT TO HELP OTHERS IN ANY WAY I CAN..HAVE JOINED MANY FORUMS AND HAVE POSTED THIS TESTIMONIES AND ALOT OF PEOPLE HAS MAIL AND CALLED THIS MAN ON PHONE AND AFTER 2 WEEKS THEY ALL CONFIRMED NEGATIVE..BBC NEWS TOOK IT LIVE AND EVERY.. HOPE HE HELPS YOU OUT.. EVERYBODY SAW IT AND ITS NOW OUT IN PAPERS AND MAGAZINES THAT THERE'S NATIVE CURE FOR HIV AND ALL WITH THE HELP OF THIS MAN,,HAVE TRIED MY OWN PARTS AND ALL LEFT WITH YOU,,IF YOU LIKE TAKE IT OR NOT..GOD KNOWS HAVE TRIED MY BEST.ABOUT 97 PEOPLE HAVE BEEN CONFIRMED NEGATIVE THROUGH ME..AND THEY SEND MAILS TO THANKS ME AFTER THEY HAVE BEEN CONFIRMED NEGATIVE,,THIS MAN IS REAL..DON'T MISS THIS CHANCE,,HIV IS A DEADLY VIRUS,,GET RID OF IT NOW..
    case there is anyone who has similar problem and still

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    ReplyDelete

  7. Nice Information About cancer . Nice work.

    ReplyDelete

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  9. hello viewers i am Randall Rush from USA. It was hard for me to believe when i saw a comment on the internet regarding how Dr. eguaga,help people winning lottery by sending them the winning numbers. This winning numbers are 100% guarantee that you must win the lottery. I give it a try and i won $50,000,000,00. My comment looks funny but it is the truth, and i promise you that it will not be funny when you win and share a testimony with others. This is a secret to win lottery so i advice you do that same. i have never believed in magical powers until i come across him, it will be of great sin if i should go out from here without dropping the contact of this great spell caster,in case you need the help of this great spell caster in winning lottery you can contact him through his Email:dreguagaendofpainspelltemple@gmail.com or eguagavoodospellcaster@gmail.com.call or whats app him now +2347010511571 once you contact him all your problems regarding luck to win a lottery will be over. thanks for saving time in viewing.

    ReplyDelete
  10. hello viewers i am Randall Rush from USA. It was hard for me to believe when i saw a comment on the internet regarding how Dr. eguaga,help people winning lottery by sending them the winning numbers. This winning numbers are 100% guarantee that you must win the lottery. I give it a try and i won $50,000,000,00. My comment looks funny but it is the truth, and i promise you that it will not be funny when you win and share a testimony with others. This is a secret to win lottery so i advice you do that same. i have never believed in magical powers until i come across him, it will be of great sin if i should go out from here without dropping the contact of this great spell caster,in case you need the help of this great spell caster in winning lottery you can contact him through his Email:dreguagaendofpainspelltemple@gmail.com or eguagavoodospellcaster@gmail.com.call or whats app him now +2347010511571 once you contact him all your problems regarding luck to win a lottery will be over. thanks for saving time in viewing.

    ReplyDelete
  11. Hello everyone, Yesterday someone directed me to a vampire lord in United State Of America and this man make me a vampire. I will advice anyone who want to become a vampire should contact Jiang Shi via email worldofvampir@hotmail.com

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  12. Hello everyone .I want to quickly drop my life stories on how a specialize-healer called DR Clifford cure me from HIV .A great man who have the root and herbs to all kind of deadly disease.i was infected with HIV disease by a man called Fred. I never stop blame my self for falling in love with him .i never think HIV can be cure with the medication doctor Clifford send to me until I was cure ,I saw his email on you-tube by a patient he have cure from herpes called FLORENCE which drop the email and phone contact of him that make me get cure by contacting him.i really thank FLORENCE for sharing her testimony on how she was cure. When I contact him.he prepare the herbal medication for my HIV cure and also send it to me in UK via DHL, that get me cure within two weeks I use it.i will still drop is address for you E-MAIL drcliffordsolutioncenter62@gmail.com So friends my advise is if you have such sickness or any other at all you can email Dr. Clifford on drcliffordsolutioncenter62@gmail.com. sir i am indeed grateful for the help i will forever recommend you to my friends!!

    ReplyDelete
  13. My name is MASTON RICKY FOWLER I write a few lines for your testimonies' page and I hope you'll publish them! Well, I was in a very big need of money and you gave me the opportunity to have a lottery spell being cast. Even if I had doubts about it, it truly worked! Now I have repaid my debts and it's like a new start in my life. I am forever thankful...talk to him now droobataspelltemple@yahoo.com ,you can also call him or add him on Whats-app: +2349051384341, https://droobataspellhome.wixsite.com/drobata , https://droobataspelltemple.skyrock.com/3293932802-I-AM-DR-O-OBATA-A-GREAT-SPELL-CASTER-AND-SPIRITUALIST-WHO-CAN-HELP-YOU.html

    ReplyDelete
  14. ALL THANKS TO DR SAMBOLA WITH HIS HERBAL PORTION I WAS COMPLETELY CURED FROM HIV. I'm here again to appreciate DR. Sambola God will always continue to bless you more abundantly, for the good treatment you gave me, I will always keep on writing good and posting my testimonies about you on the Internet, facebook etc, I was tested HIV positive, I saw a blog on how Dr. Sambola cured people with his herbal portion, I did not believe, even when I saw his advert on newspapers, but I just decided to give him a try, I contacted him and also got my healing, I am so happy. If you have any problem or you are also infected with any disease, like HIV, GONORREH, SKIN INFECTION, CANCER, DIABETES, HEPATITIS B, PHV Etc, EVEN GETTING YOUR EX-BOY/GIRL FRIEND, WIFE, HUSBAND BACK, OR RESTORATION OF DIVORCE. Contact him on: drsambolaose@gmail.com call / whatsapp him: +2348034453159 for advice and for his herpes hope this testimony also help someone out there. Website: http://newyork.chaosads.com/item/425303/

    ReplyDelete
  15. Am really happy that i and my husband are cured of (HERPES SIMPLEX VIRUS) with the herbal medicine of Dr Agbebaku , i have been suffering from this disease for the past 3 years without solution until i came across his email of this doctor who have cure so many people with hiAs herbal medicine, i also choose to give him a chance to help me and my husband, he told me what to do and i kindly did it, and he gave us his herbal medicine and direct me on how to use it, i also follows his instruction for use and he ask us to go for a check up after 3 weeks and which i did, to my greatest surprise our result came out as negative, we are really happy that there is someone like this DR Agbebaku who is ready to help anytime any day. to all the readers and viewers that is doubting this testimony stop doubting it and contact this Dr and see if he will not actually help you. i am not a stupid woman that i will come out to the public and start saying what someone have not done for me .contact him now if you are also in need of help via email dragbebakuspellsolutiontemple@gmail.com or dragbebakuherbalhome@yahoo.com call or text him on +13157951518 may bless you sir for all your good works. contact dr Agbebaku today for your following diseases below HIV/AIDS DIABETES HPV PENIS ENLARGEMENT BRAIN TOMOUR, see more at;https://dragbebakuherbalho.wixsite.com/solutioncenter

    ReplyDelete
  16. I was checking for solution in the internet then miraculously came Across Dr Miracle, the powerful herbalist that Cure Numerous individuals HSV-1 AND HSV-2 INFECTION,then i contacted his Email: (MIRACLESPELLHOME@YAHOO.COM) I Explained everything to him and prepared a cure that cure my HSV-1 AND HSV-2 Disease totally after receiving his Herbal medicine, So My friends viewers why wait and be suffer when there is someone like Dr Miracle,that can cure any disease HIV/ CANCER/ HEPATITIS B VIRUS,LOW SPERM COUNT,ALS,ANCE PIMPUS,LUPUS VIRUS,You Can "CONTACT Via : Email : (MIRACLESPELLHOME@YAHOO.COM) You Can Contact Him Today And Get Your Problem Solved Or"Call +2348071398555.." Or You Can Also Contact Him Through His Website http://miraclespellhome.webs.com/

    ReplyDelete
  17. Greetings to you all, I want to tell you all about how i was cured of HIV/AIDS disease by a Doctor called Akhide Ojugo. I was browsing through the Internet searching for remedy on HIV, when i saw comments of people talking about how Dr. Akhide Ojugo cured them. I Was scared because i never believed in the Internet but i was convince to give him a try because i have no hope of been cured of HIV/AIDS so i decided to contact him with his email that was listed on the comment [akhideojugoherbalhome@gmail.com] when i contacted him he gave me hope and send a Herbal medicine to me that i took and it seriously worked for me, am a free person now without problem, my HIV result came out negative. I pray for you Dr Akhide Ojugo God will give you everlasting life, you shall not die before your time for being a sincere and grate man.
    Am so happy, you can also contact him if you have any problem{like spell to bring back your ex, any kind of diseases you have...
    Email: akhideojugoherbalhome@gmail.com OR
    What'sAPP number:+2348023836231

    ReplyDelete
  18. I want to use this opportunity to thank Dr.Clifford for making me a complete woman again, i was infected with herpes for years i have been seriously praying to God and searching for cure. I came here last month to search for solution to my herpes infection and i saw a comment of people praising different doctors and God directed me to choose Dr.Clifford and i contacted Him, he sent me a herbal medication and directed me on how i will take the medication for few days, i did so and went for a test and my result came out as Negative. i am so happy friends,Dr.Clifford solve my problem. I am a clean woman now, without any virus.I will still drop is address for you E-MAIL drcliffordsolutioncenter62@gmail.com or number +23408105049840

    ReplyDelete
  19. I never thought i would be HIV negative again after been diagnosed in 2015, i have tried everything possible in life from one doctor to another, one hospital to another, series of tests, different kinds of medication, i had already lost hope until i meet Great Dr. OSAGIE online testimonies, a specialist in herbal medication from Africa, i contacted him (drosagiesolutiontemple@gmail.com OR
    DROSAGIESOULTIONTEMPLE@YAHOO.COM) and he prepared HIV herbal medication for me which i took for 7days and now i am completely cured. i want to use this medium to express my gratitude to him for saving my life and curing me from HIV, for taking away all my pains and sorrows, I''m indeed grateful and i am so happy I''m now HIV negative. i will continue to tell the good news of your great works to everyone, if you have HIV or other disease contact him, Email: his email: (drosagiesolutiontemple@gmail.com OR
    DROSAGIESOULTIONTEMPLE@YAHOO.COM .wixsite.drosagiesolutionte.wixsite.com/solution or oh his blooger .http://drosagiesolutiontemple.blogspot.com.ng
    ) or His Whatsapp number: +2347030465649
    thank you my great dr for curing me keep up your great work

    ..

    ReplyDelete


  20. I want to share this wonderful testimony to the people all over the world on how i was cured of herpes disease by Dr Oduku. I'm from USA, i was living with herpes for the past two years, just last month as i was browsing on the internet about this deadly disease, i saw a testimony of somebody called Jason, testifying of how he was cured from herpes by Dr Oduku and i decided to also email this Dr Oduku via odukuherbalremedies@gmail.com and tell him about my problem, he told me to send him some of my personal details which i did and then he prepare the treatments and send them to me through DHL. he give me the instructions on how to use the treatment for 21 days and after 14 days, he told me to go for herpes test which i did and to my greatest surprise i was confirmed negative. all thanks be to Dr Oduku and God almighty for curing me of this deathly disease after 2 years and if you know that you are in this same problem email him now via email odukuherbalremedies@gmail.com & https://naturalherbalremedyblog.wordpress.com or WhatsApp +2349064430408 and i strongly believe that he will help you just as he did mine.

    ReplyDelete
  21. I want to use this oppotunity to thank Dr Osebor for helping me to win the lottery.I have been playing the lottery for the past 2 years now and the only big money i have ever won was 1000$.Ever since then i have not been able to win again and i was so upset and i need help to win the lottery so i decided to go online and search for help,there i saw so many good talk about this man called Dr Osebor of how he have cast spell for people to win the lottery.I contact him also and tell him i want to win a lottery he cast a spell for me which i use and i get my ticket and play and i won $50million.I am so greatful to this man just incase you also need him to help you win,you can contact him through his email: oseborwinbacktemple@gmail.com or call OR WHAT SAPP him at +2349066110887

    ReplyDelete